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kappa/lambda/ Multiple Myeloma

Hi, I'm MICHAEL R H.

Does anyone have multiple myeloma or knows how to explain the test results?

  • Post #1
  • Wed Aug 26, 2020
I'm AINIS K., and I'm a survivor of Multiple Myeloma

Speaking only for myself. I was diagnosed with multiple myeloma 1 1/2 years ago. I drove myself crazy with the out of normal range test results. I’ve learned to trust my oncologist and medical team. They look at the whole picture and study trends. When I board an airplane I don’t worry about any gauges that are out of normal range. I trust the pilot and crew to get me safely to my destination. Worrying only detracts from enjoying every day, and will not change the eventual outcome of our lives. By nature, I’m a control freak – but I’ve learned to let it go. I know this is not the answer you are looking for, but it is what works for me. Good luck with your journey.

  • Post #2
  • Thu Aug 27, 2020
Hi, I'm PHYLLIS H.

Very good answer……

  • Post #3
  • Fri Aug 28, 2020
Hi, I'm nskateh

The blood test results I get also include normal range numbers. You can Google the blood test results and normal range to learn what the numbers mean and how well you are doing.

  • Post #4
  • Thu Sep 3, 2020
Hi, I'm Bruce R Z.

As a previous poster mentioned, trust your Oncological team, but I would add, that if you are concerned about any of the individual test results, as your oncologist directly. They should be more than willing to explain to you what they are looking for and looking at.I know that I have learned a great deal form asking simple questions. After Chemo, Radiation and a Stem Cell Transplant, I had noticed that some of the kappa and lamdba proteins started going up and was concerned. My oncologist explained that not only the values but the ration of the 2 proteins to each other is looked at as well. While I eventually did fall out of remission, a new monoclonal antibody treatment has it back under control. I am told that if it drops out of remission again there are more new treatments waiting in line. Knowing that, helps me keep my sanity.

  • Post #5
  • Sun Oct 18, 2020
Hi, I'm William F.

Yes! The doctor told my husband just do as we tell you and you’ll be fine. He just came home from hospital Monday from his stem cell transplant.

  • Post #6
  • Wed Oct 21, 2020
srs
srs
Hi, I'm srs
srs

Their are many ups and downs with MM. The only thing that never
changes is God. Put your faith in Him.

  • Post #7
  • Thu Oct 22, 2020
I'm Florahwilliams, and I support someone with cancer

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  • Post #8
  • Fri Oct 23, 2020
Hi, I'm Sunny

I was diagnosed stage 3 MM in 2006. I am female and was 47. Healty, active, 1st yr was chemotherapy. 2nd yr 2 stem cell transplants than since Revlimid/Dexamethasone. 14 yrs later I am on Velcade shots every 2 weeks. I am healthy enough but the damage is done. My bones are a bit thin but I have not had any fractures. My life is so different now but other than running, jumping and heavy lifting, I feel great. I trust my doctors. If I had 1 caution to speak out, it would have to be the I.V. Zometa. It has strengthened my bones but my side effects were BRONJ. I have lost teeth and now going thru jaw problems. Zometa cements the jaw bone so well it doesn’t let enough bloodflow to keep it from slowing dying. So altho it happened to me, rare happening but not so uncommon. Please be aware of long treatment of Zometa. It stays in your bones for approximately 10 yrs after stopping it.
MM is not a pleasant cancer but life can normal once it is stabilized. I wish everyone the best. My saying is " I will die with it but not from it".

  • Post #9
  • Fri Oct 23, 2020
Hi, I'm Dexter L.

Does anyone has bone metastasis along with MM?

  • Post #10
  • Fri Oct 30, 2020

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